living with chronic illness and disability is living with a body that is constantly betraying you. i only speak from my own experience, which is that of someone who went from relatively healthy with a few weird but livable issues, to disabled, in constant pain, always fighting the truth of my own flesh. because of it i’m stranded in between believing fully in the social model of disability and knowing that no matter how much we improve society, i’m still going to hate being this way. it will always suck for me. there are people for whom the social
This post was originally published on my Medium profile on January 6, 2016. My left pinky has become permanently numb. I don’t know when this started. Every day I press it, hard, to the palm of my hand, in the hopes that that feeling, that pins and needles, that signal to my brain that something is wrong with the flesh — in the hopes that will disappear. It never does. My pinky has become permanently numb.
This should be said. I know that some of you are aware that I don’t listen to podcasts, but I’m thinking of doing one regardless. I feel I should be clear on this. I have an auditory processing deficit. This doesn’t mean I can’t hear — my physical ears work fine. It does mean that what I do hear may or may not actually make it to my working memory, and from there on to my long-term memory. So when you tell me something, I may not “hear” it. It doesn’t mean I’m not listening — I’m actually very