Yesterday I ran a lot into something that’s physically painful for me to see: clappy hand emojis between words. It’s an internet trend to make what are considered important points this way, instead of the old-fashioned placing of a period between each word. (What. was. wrong. with. that?) You’re probably wondering why/how it makes me sick. The best explanation I can come up with is that my visual processor is over-developed and hyper-competent after a lifetime of having to make up for my auditory disabilities — my hearing is fine, my brain has problems processing and parsing sounds —
living with chronic illness and disability is living with a body that is constantly betraying you. i only speak from my own experience, which is that of someone who went from relatively healthy with a few weird but livable issues, to disabled, in constant pain, always fighting the truth of my own flesh. because of it i’m stranded in between believing fully in the social model of disability and knowing that no matter how much we improve society, i’m still going to hate being this way. it will always suck for me. there are people for whom the social
This post was originally published on my Medium profile on January 6, 2016. My left pinky has become permanently numb. I don’t know when this started. Every day I press it, hard, to the palm of my hand, in the hopes that that feeling, that pins and needles, that signal to my brain that something is wrong with the flesh — in the hopes that will disappear. It never does. My pinky has become permanently numb.
It occurred to me that, while I often mention my injury or identify as disabled, I don’t really talk about what it’s like to live with this injury. I think people get confused, because some days they see me doing things that make it look like I’m a-ok, and the next day I can’t even get out of bed. The fact is if you don’t have an injury like this, or chronic illness or disability, you don’t know what it’s like, and you really won’t unless something happens to make you end up in that position. Before the spinal